T3_S1_A1 I have to overcome a lot of ‘red tape’ when sorting things out for the person I care for
0 = disagree
1 = agree

T3_S1_B1 I don't have time for anything in my life except being a carer
1 = strongly agree
2 = agree
3 = disagree
4 = strongly disagree

T3_S2_1 EQ-5D_Mobility
1 = I have no problems in walking about
2 = I have some problems in walking about
3 = I am confined to bed

T3_S2_2 EQ-5D_Self-Care
1 = I have no problems with self-care
2 = I have some problems washing or dressing myself
3 = I am unable to wash or dress myself

T3_S2_3 EQ-5D_Usual Activities
1 = I have no problems with self-care
2 = I have some problems with performing my usual activities
3 = I am unable to perform my usual activities

T3_S2_4 EQ-5D_Pain/Discomfort
1 = I have no pain or discomfort
2 = I have moderate pain or discomfort
3 = I have extreme pain or discomfort

T3_S2_5 EQ-5D_Anxiety/Depression
1 = I am not anxious or depressed
2 = I am moderately anxious or depressed
3 = I am extremely anxious or depressed

T3_SWEMWBS_S3_1 I've been feeling optimistic about the future
1 = none of the time
2 = rarely
3 = some of the time
4 = often
5 = all of the time

T3_S4 Has your caring situation significantly changed over the last six months
1 = My caring situation is signifcantly worse
2 = My caring situation is about the same
3 = My caring situation is signifcantly better

T3_S4 Quality Of Life change in six months
1 = Much worse
2 = Worse
3 = About the same
4 = Better
5 = Much better

T3_S4_5 Did you give up work to care
1 = Yes, I gave up work
2 = No, I did not give up work

T3_S4_6 What is your current employment status
1 = Not in paid work: Retired
2 = Not in paid work: Unable to work due to disability
3 = Not in paid work: Unable to work due to caring for the perso
4 = Not in paid work: At home and not looking for paid employmen
5 = Not in paid work: Student
6 = Not in paid work: Other
7 = Paid work, full time (30 hours or more per week)
8 = Paid work, part time (less than 30 hours per week)

T3_S4_7 Have you had to take time off in the last month to care
1 = a. Yes
2 = No
3 = I am not in paid work

T3_S4_11 Do you live with the person you care for
1 = Yes
2 = No

T3_S5_6 what severity of dementia
1 = Mild – Needs some assistance with day-to-day life due to dem
2 = Moderate – Has obvious difficulties with memory or thinking
3 = Severe – Has great difficulty communicating and needs help w

1 = Up to one hour
2 = Up to half a day
3 = A whole day
4 = A whole night
5 = A whole day and night