T1_S1_A1 I have to overcome a lot of ‘red tape’ when sorting things out for the person I care for
1 = agree
2 = disagree

T1_S1_B1 I don't have time for anything in my life except being a carer
1 = strongly agree
2 = agree
3 = disagree
4 = strongly disagree

T1_S2_1 EQ5D Mobility
1 = I have no problems in walking about
2 = I have some problems in walking about
3 = I am confined to bed

T1_S2_2 EQ5DSelf-Care
1 = I have no problems with self-care
2 = I have some problems washing or dressing myself
3 = I am unable to wash or dress myself

T1_S2_3 EQ5D Usual Activities
1 = I have no problems with self-care
2 = I have some problems with performing my usual activities
3 = I am unable to perform my usual activities

T1_S2_4 EQ5D Pain/Discomfort
1 = I have no pain or discomfort
2 = I have moderate pain or discomfort
3 = I have extreme pain or discomfort

T1_S2_5 EQ5DAnxiety/Depression
1 = I am not anxious or depressed
2 = I am moderately anxious or depressed
3 = I am extremely anxious or depressed

T1_S3_1 SWEMWBS I've been feeling optimistic about the future
1 = none of the time
2 = rarely
3 = some of the time
4 = often
5 = all of the time

T1_S4_2 What is your gender?
1 = Male
2 = Female

T1_S4_3 Did you continue education after the minimum school leaving age?
1 = Yes
2 = No

T1_S4_6 What is your current employment status?
1 = Not in paid work: Retired
2 = Not in paid work: Unable to work due to disability
3 = Not in paid work: Unable to work due to caring for the perso
4 = Not in paid work: At home and not looking for paid employmen
5 = Not in paid work: Student
6 = Not in paid work: Other
7 = Paid work, full time (30 hours or more per week)
8 = Paid work, part time (less than 30 hours per week)

T1_S4_7 If you are in paid work, have you had to take any time off work in the last
1 = a. Yes
2 = b. No
3 = c. I am not in paid work

T1_S4_9 What is your ethnic group?
1 = White
2 = Chinese
3 = Mixed
4 = Black
5 = Asian
6 = Other

T1_S4_10 What is your relationship to the person you care for?
1 = Spouse or partner
2 = Son or daughter
3 = Son in law or daughter in law
4 = Other relative
5 = Friend
6 = Other

T1_S5_3 How would you describe the area where the person you care for lives?
1 = Urban
2 = Suburbab
3 = Rural

T1_S5_5 What is their diagnosis?
1 = Alzheimer's disease
2 = Fronto-temporal dementia
3 = Vascular dementia
4 = Other
5 = Not known

T1_S5_6 How would you describe the severity of the person’s dementia?
1 = Mild – Needs some assistance with day-to-day life due to dem
2 = Moderate – Has obvious difficulties with memory or thinking
3 = Severe – Has great difficulty communicating and needs help w

1 = Up to one hour
2 = Up to half a day
3 = A whole day
4 = A whole night
5 = A whole day and night