Dementia Carers Instrument Development (DECIDE) - Qualitative interview data
Wright, Penny and Oyebode, Jan and Clare, Linda and Brayne, Carol and Al-Janabi, Hareth and Hoare, Zoe and Kind, Paul and Tennant, Alan and Pini, Simon and Megson, Molly and Ingleson, Emma
(2018)
Dementia Carers Instrument Development (DECIDE) - Qualitative interview data.
University of Leeds.
[Dataset]
https://doi.org/10.5518/375
This item is part of the
Dementia Carers Instrument Development (DECIDE) collection.
Dataset description
This dataset contains qualitative interview transcripts, obtained from 41 of 42 semi-structured interviews with a purposively diverse sample of primary carers aged ≥16 years, supporting a partner or family member who had a diagnosis of dementia and living in the community. Participants included 28 females, and 14 males (aged 31-83). The sample included 22 carers who were husband or wife of the person with dementia, and 20 who were daughters, sons, daughter-in-laws or granddaughters. Specific diagnoses of the person with dementia included Alzheimer's disease, vascular dementia, or other. Open questions were used to explore carers’ experiences, thoughts, and feelings related to challenging and rewarding experiences and events. Socratic questioning was employed, through asking carers to reflect on why particular experiences of care made them feel or think as they did. In this way, we aimed to uncover underlying needs that were impacted upon by the carer experience and generate nuanced contextualized accounts of how caring impacted on carers’ lives.
Additional information: |
To gain access to interview transcripts follow the bottom link to the Restricted Access Data Repository (RADAR) in "Related resources:" below. |
Keywords: |
dementia, carers, interview, qualitative, transcripts, impact of caring, quality of life, needs-led, community, informal carer,sociodemographic, socratic questioning |
Divisions: |
Faculty of Medicine and Health > School of Medicine |
Related resources: |
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Date deposited: |
12 Sep 2018 13:35 |
URI: |
http://archive.researchdata.leeds.ac.uk/id/eprint/417 |
Creators: |
Creators | ORCID | Other ID | Email | Primary affiliation | Primary affiliation ID | Primary affiliation ID type | Secondary affiliation | Secondary affiliation ID | Secondary affiliation ID type |
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Wright, Penny | https://orcid.org/0000-0001-6129-4143 | | | University of Leeds | https://doi.org/10.13039/501100000777 | crossref | | | | Oyebode, Jan | https://orcid.org/0000-0002-0263-8740 | | | University of Bradford | https://doi.org/10.13039/100010329 | crossref | | | | Clare, Linda | https://orcid.org/0000-0003-3989-5318 | | | University of Exeter | https://doi.org/10.13039/501100000737 | crossref | | | | Brayne, Carol | https://orcid.org/0000-0001-5307-663X | | | University of Cambridge | https://doi.org/10.13039/501100000735 | crossref | | | | Al-Janabi, Hareth | https://orcid.org/0000-0002-3691-8310 | | | University Of Birmingham | https://doi.org/10.13039/501100000855 | crossref | | | | Hoare, Zoe | https://orcid.org/0000-0003-1803-5482 | | | Bangor University | https://doi.org/10.13039/501100003547 | crossref | | | | Kind, Paul | https://orcid.org/0000-0003-2377-1652 | | | University of Leeds | https://doi.org/10.13039/501100000777 | crossref | | | | Tennant, Alan | https://orcid.org/0000-0002-0728-2130 | | | | | | | | | Pini, Simon | https://orcid.org/0000-0001-8455-3240 | | | University of Leeds | https://doi.org/10.13039/501100000777 | crossref | | | | Megson, Molly | | | | University of Leeds | https://doi.org/10.13039/501100000777 | crossref | | | | Ingleson, Emma | | | | University of Leeds | https://doi.org/10.13039/501100000777 | crossref | | | |
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Type of data: |
Dataset |
Contributors: |
Contribution | Name | ORCID | Other ID | Email | Primary affiliation | Primary affiliation ID | Primary affiliation ID type | Secondary affiliation | Secondary affiliation ID | Secondary affiliation ID type |
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Data curator | Shearsmith, Leanne | https://orcid.org/0000-0002-6575-0529 | | | University of Leeds | https://doi.org/10.13039/501100000777 | crossref | | | |
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Research funders: |
Medical Research Council, National Institute for Health Research |
Grant numbers: |
MR/M025179/1 |
Publication date: |
2018 |
Geographic coverage: |
United Kingdom |
Data collection method: |
Interviews |
Legal and ethical issues: |
Approved by NHS Health Research Authority South Central - Oxford B Research Ethics Committee:05 November 2015; 15/SC/0673 |
Resource language: |
English |
Metadata language: |
English |
Research project title: |
DECIDE |
Publisher: |
University of Leeds |
Contact Email Address: |
e.p.wright@leeds.ac.uk |
Last Modified: |
17 Feb 2020 09:25 |
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