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Dementia Carers Instrument Development (DECIDE) - Qualitative interview data

Wright, Penny and Oyebode, Jan and Clare, Linda and Brayne, Carol and Al-Janabi, Hareth and Hoare, Zoe and Kind, Paul and Tennant, Alan and Pini, Simon and Megson, Molly and Ingleson, Emma (2018) Dementia Carers Instrument Development (DECIDE) - Qualitative interview data. University of Leeds. [Dataset] https://doi.org/10.5518/375

This item is part of the Dementia Carers Instrument Development (DECIDE) collection.

Dataset description

This dataset contains qualitative interview transcripts, obtained from 41 of 42 semi-structured interviews with a purposively diverse sample of primary carers aged ≥16 years, supporting a partner or family member who had a diagnosis of dementia and living in the community. Participants included 28 females, and 14 males (aged 31-83). The sample included 22 carers who were husband or wife of the person with dementia, and 20 who were daughters, sons, daughter-in-laws or granddaughters. Specific diagnoses of the person with dementia included Alzheimer's disease, vascular dementia, or other. Open questions were used to explore carers’ experiences, thoughts, and feelings related to challenging and rewarding experiences and events. Socratic questioning was employed, through asking carers to reflect on why particular experiences of care made them feel or think as they did. In this way, we aimed to uncover underlying needs that were impacted upon by the carer experience and generate nuanced contextualized accounts of how caring impacted on carers’ lives.

Additional information: To gain access to interview transcripts follow the bottom link to the Restricted Access Data Repository (RADAR) in "Related resources:" below.
Keywords: dementia, carers, interview, qualitative, transcripts, impact of caring, quality of life, needs-led, community, informal carer,sociodemographic, socratic questioning
Divisions: Faculty of Medicine and Health > School of Medicine
Related resources:
LocationType
https://doi.org/10.1093/geront/gnx148Publication
http://decideproject.co.uk/Website
https://doi.org/10.1007/s40271-018-0334-4Publication
https://doi.org/10.1093/geront/gnz136Publication
https://radar.researchdata.leeds.ac.uk/6/Dataset
Date deposited: 12 Sep 2018 13:35
URI: https://archive.researchdata.leeds.ac.uk/id/eprint/417

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